National Organization
- ACHA: Adult Congenital Heart Association – All Congenital Heart Defect survivors should have the “toolkit” they need to protect and improve their lifelong health and well-being.
- American Heart Association – Congenital Heart Defects Tools and Resources.
- Cardiac Arrhythmias Research and Education Foundation – Formulates, promotes and leads initiatives to prevent sudden cardiac death due to acquired and inherited heart rhythm disorders.
- CHARGE Syndrome Foundation – Provides support to individuals with CHARGE syndrome and their families.
- Children’s Cardiomyopathy Foundation – Dedicated to accelerating the search for cures while improving diagnosis, treatment and quality of life for children affected by cardiomyopathy.
- Children’s Miracle Network – They increase funds and awareness for local children’s hospitals.
- Congenital Heart Information Network – Provides reliable information, advocacy, support services, financial assistance and resources to people affected by congenital heart defects.
- Heterotaxy Foundation – Focuses on research and promotes awareness of Heterotaxy Syndrome.
- National Association for Down Syndrome – Our mission is to ensure that all persons with Down syndrome have the opportunity to achieve their potential in all aspects of community life.
- National Heart Lung and Blood Institute – Provides science-based, easy-to-understand information related to heart, lung and blood diseases and conditions.
- Noonan Syndrome Foundation – Focused on finding life-saving and effective medical treatments, raising awareness, educating the public and healthcare providers, building community through social media and providing informational support services to our community.
- Ronald McDonald House Charities – Provides temporary housing for families who travel to Las Vegas to receive critical medical treatment for their children.
- Spina Bifida Association – Serves adults and children who live with the challenges of Spina Bifida. Its tools are education, advocacy, research, and service.
